Scout | Hereditary Hemorrhagic Telangiectasia (HHT) Center

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Hereditary Hemorrhagic Telangiectasia (HHT) Center

The Hereditary Hemorrhagic Telangiectasia (HHT) program aims to reduce health complications and deaths from HHT by improving patient care access and coordination. Additionally, it seeks to create a patient data registry to enhance understanding of the disease and its treatment results.

Source

Agency: Health Resources and Services Administration

Award

Total Funding: $1.8M

Eligibility

Others (see text field entitled "Additional Information on Eligibility" for clarification)

Keywords

Hereditary Hemorrhagic Telangiectasia

HHT

morbidity reduction

mortality reduction

patient care coordination

data registry

rare diseases

treatment outcomes

healthcare access

MCHB.

Supporting Links

Documents

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