Hereditary Hemorrhagic Telangiectasia (HHT) Center
The Hereditary Hemorrhagic Telangiectasia (HHT) program aims to reduce health complications and deaths from HHT by improving patient care access and coordination. Additionally, it seeks to create a patient data registry to enhance understanding of the disease and its treatment results.
The purpose of the Hereditary Hemorrhagic Telangiectasia (HHT) program is to reduce morbidity and mortality associated with HHT by: 1) expanding access to and coordination of care for HHT patients; and 2) developing a de-identified, aggregate patient data registry to better understand this rare …
Funding Source
Awards & funding
Eligibility
Public Entities, Institutions of Higher Education, Tribes and Tribal Organizations, For-profit organizations, Small businesses, Nonprofits
Supporting links
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