Hereditary Hemorrhagic Telangiectasia (HHT) Center
This program supports partnerships with clinical centers to improve access to care for people with hereditary hemorrhagic telangiectasia (HHT). It funds efforts to help clinicians identify and diagnose HHT and to create a de-identified, aggregate patient registry to study the disease and treatment outcomes. The goal is to reduce illness and death from HHT by strengthening coordinated, innovati…
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