Scout | HHT Center Program: expand care and build a patient data registry for hereditary hemorrhagic telangiectasia

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HHT Center Program: expand care and build a patient data registry for hereditary hemorrhagic telangiectasia

This program supports partnerships with clinical centers to improve access to care for people with hereditary hemorrhagic telangiectasia (HHT). It funds efforts to help clinicians identify and diagnose HHT and to create a de-identified, aggregate patient registry to study the disease and treatment outcomes. The goal is to reduce illness and death from HHT by strengthening coordinated, innovati…

Source

Agency: Health Resources and Services Administration

Award

Total Funding: $2.9M

Award Ceiling: $2.9M

Dates

Open Date: June 8, 2026

Close Date: July 10, 2026

Eligibility

government

State governments

Keywords

hht

hereditary hemorrhagic telangiectasia

rare disease

clinical center

patient registry

care coordination

diagnosis support

treatment outcomes

Supporting Links

Documents

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