Long-term health outcomes of people living with spina bifida
This NOFO supports research centers to collect and analyze long-term, longitudinal health data from people living with spina bifida who are followed in specialized spina bifida clinics through the National Spina Bifida Patient Registry. It also funds implementation and evaluation of the UMPIRE protocol to improve urinary and kidney management in young children with myelomeningocele, with an ad…
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