Scout | Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry

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Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry

This grant opportunity is looking for organizations to focus on two key areas related to spina bifida. Component A involves selecting 8-11 awardees to gather detailed, ongoing data on children and adults with spina bifida who are treated at specialized clinics. The goal is to analyze this data to improve understanding of patient outcomes and care. Component B, with 6-8 awardees, is centered on…

Source

Agency: Centers for Disease Control - NCBDDD

Award

Total Funding: $2.3M

Award Ceiling: $488,571

Award Floor: $166,428

Eligibility

tribal

small_business

nonprofit

university

government

Native American tribal governments (Federally recognized)

For profit organizations other than small businesses

Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education

Private institutions of higher education

Independent school districts

Special district governments

Keywords

Spina Bifida

Longitudinal Data Collection

Urologic Management

Renal Function

Myelomeningocele

Pediatric Healthcare

Patient Registry

Specialized Clinics

Health Outcomes

Treatment Evaluation

Supporting Links

Documents

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