Scout | CDC-RFA-DD-25-0127: Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry

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grant CDC-RFA-DD-25-0127

Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry

Summary

This grant opportunity is looking for organizations to focus on two key areas related to spina bifida. Component A involves selecting 8-11 awardees to gather detailed, ongoing data on children and adults with spina bifida who are treated at specialized clinics. The goal is to analyze this data to improve understanding of patient outcomes and care. Component B, with 6-8 awardees, is centered on…

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B …

Funding Source

Agency: Centers for Disease Control - NCBDDD

Awards & funding

Total Funding: $2.3M

Award Ceiling: $488,571

Award Floor: $166,428

Eligibility

Native American tribal governments (Federally recognized)

For profit organizations other than small businesses

Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education

Private institutions of higher education

Independent school districts

Special district governments

Organizations will determine eligibility per Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13

Supporting links

grants.gov

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